If you’re feeling utterly wiped after a stroke, you’re not alone. Post-stroke fatigue is very common among stroke survivors.
If you’re feeling utterly wiped after a stroke, you’re not alone. Post-stroke fatigue is very common among stroke survivors.
Fatigue can happen after a stroke or a transient ischaemic attack (TIA or mini-stroke). And it’s more than just feeling tired – fatigue is an intense, draining exhaustion that won’t go away with more sleep or rest.
For many, fatigue is one of the hardest things to manage after a stroke.
It can have a profound impact both physically and mentally on those living with it.
So, how long does post-stroke fatigue last?
Well, the frustrating truth? There is no set timeline. Fatigue can last for weeks, months, or sometimes years after a stroke. It varies from person to person, depending on many factors such as how your stroke affected you or whether fatigue was an issue before it happened.
We know that’s not the answer anyone wants. When you’re in the throes of it, you just want to know when it will stop. It’s one of the most common stroke-related searches on Google.
But while there’s no exact timeframe to hold on to, it’s not all lost. There are some things that have helped others who found themselves where you are now.
So, here are some top tips that may help, drawn from our information on fatigue:
1) Your first port of call: talk to your GP
Telling your GP or stroke team about your fatigue may help them identify any underlying issues that may cause fatigue or tiredness, such as medication side effects or sleep problems. They may be able to suggest treatments which can help if these things are causing your fatigue.
(Remember, never stop taking your medication without speaking to your doctor first.)
2) Make sure those around you understand your fatigue
Fatigue isn’t always an obvious symptom and loved ones or carers might not realise how much you’re struggling with it. Let them know what you’re going through. This can help them support you better, whether it’s giving you time and space to rest or helping you out with tasks you’re too exhausted to face.
3) Three Ps: Pace, Plan, Prioritise
Fatigue can come and go, so learning to manage, and somewhat allocate your energy, is key. So…
- Pace: spread tasks out rather than doing too much at once.
- Plan: schedule important activities for times when you have the most energy.
- Prioritise: focus on what’s essential and let less urgent tasks wait.
4) Give yourself time
Fatigue won’t disappear overnight. Accepting that recovery takes time can make it easier to cope mentally. Be kind to yourself, and allow your body the time it needs to recover.
5) Set realistic activity goals
It’s tempting to try to ‘push through’ the fatigue, but that may make things worse. Figure out what you can handle in a day and stick to it. If you overdo it, you might need extra time to recover, which can be frustrating and make you feel like you are taking steps back.
6) Start with gentle exercise
Exercise has been shown to help with fatigue. But start small! Even a short amble or gentle movement can make a difference. If you’re unsure where to start, a physiotherapist can help. You might also like to check out our online fitness classes for stroke survivors. But make sure to talk to your doctor first if you’ve not exercised for a while or are unsure if an activity is right for you.
7) Build stamina gradually when you’re up to it
Slow and steady wins the race. If you try to do too much too soon, you may feel like you’re going backward. Instead, increase your activity level little by little.
… And try not to push yourself on a ‘good day’, only to crash the next. Steady progress is better than boom-and-bust cycles.
8) Track your progress…
Keep a simple diary - with a notebook, voice note on your phone, or even snap a photo. This will help you see how far you’ve come. Looking back can remind you of your progress in those times when you feel deflated.
9) … and celebrate those wins
It’s easy to focus on what you can’t do anymore, but don’t forget to acknowledge the things you’re regaining. Every small step forward is worth celebrating!
A final word...
Post-stroke fatigue can be gruelling, but you’re not alone. While there’s no set timeframe of when the fatigue might end, there are ways to manage your energy that will help you start feeling more in control.
Take it one day at a time and, remember, progress, no matter how small, is still progress!
Talk to others who know what you’re going through
You can talk to others who have lived experience of stroke in our Online Community (you will need to sign up to post).
Call our Stroke Support Helpline
Our Stroke Support Helpline team are there if you want to speak to them on 0303 3033 100.
Detailed information
We have expert information and aphasia-friendly videos on our fatigue and stroke webpage. You may also find our physical effects of stroke area helpful.
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