Resources to help me understand my child's stroke
You can find more information about perinatal and neonatal (new born babies) stroke.
Our childhood stroke factsheet includes useful information for parents and carers.
You can also find out more by visiting these pages:
Our childhood stroke question and answer sheets can help you to think about questions to ask at health appointments and when your child starts or returns to education. These have been developed through working with parents and professionals:
We've also developed a small medical information card for use by children after a stroke.
We know that childhood stroke changes the lives of children and their families in an instant. That's why our dedicated Childhood Stroke Support team is here: to support you with practical information on a wide range of topics and emotional support, whenever you need us.
You can get support by filling out a simple form here and we'll get in touch.
If you'd like to know more about the Childhood Stroke Support Service you can read our information leaflet or download an introductory card with our contact details.
Lived experiences
Jess and Emily
Jess's daughter, Emily, had multiple strokes when she was four years old.
Rebecca and Jacob
Rebecca’s son, Jacob, had perinatal stroke, which means he had his stroke before he was even born.
Rachel and Austin
Rachel’s son, Austin, suffered a stroke when he was 12 minutes old. She became a parent-to-parent volunteer
Jade and Corey
Jade's son, Corey, suffered a stroke when he was 7 years old, caused by moyamoya disease.
- My Child had A Stroke - a Facebook group led by parents of children who have had a stroke. The group has over 1000 members who share experiences and offer one another vital peer support and useful practical tips. The group are fantastic advocates for stroke in childhood. They've been instrumental in shaping and co-producing our Childhood Stroke Support service.
- Hemihelp - is a UK charity helping families living with Hemiplegia.
- Acquired Brain Injury in Children: A Parents' Handbook - a comprehensive guide from The Children's Trust.
- The International Alliance for Pediatric Stroke has a range of resources and publications about childhood stroke.
- A Stroke Can Happen at Any Age by the International Alliance for Pediatric Stroke is a video made to raise awareness that stroke happens to infants, children and even before birth.
- IAS Services - offers information, advice and support for disabled children, young people, parents, and those with special educational needs. You can check here if there is a service in your area.
- IPSEA - an organisation that offers legal advice, support, and training for parents around Special Educational Needs.
- Council for Disabled Children - a national umbrella body that brings together a diverse range of organisations that work with and for disabled children, to support the development and implementation of policy and practice.
- SOS!SEN - an organisation that offers information and advice on special educational needs and disability through a national helpline and local walk-in SEN advice centres.
- Statutory guidance on supporting children at school with medical conditions - includes examples of care plans.
- Visit our returning to school after a stroke webpage for information and useful tips.
Useful Links
Parent-To-Parent Volunteer Calls